Last Summer I had the most overwhelming pleasure of hosting my dear friend's son for a month. They live in Yorkshire and are "horsey" folk, his intention was to work at our therapeutic riding facility while beefing up his university resume by doing so overseas. We had the best time firing off fireworks on the 4th of July, going to Hooters so that he could charm the servers with his British accent, sitting around and playing video games with all of the neighborhood boys, training horses and laughing. Mostly laughing. I think I lost two inches from my waist from all of the hooting and cackling that we did together. When he left, I cried. I didn't say goodbye to him, I just made him promise to come back.
The apple doesn't fall far from the tree, his whole family is really great. Fun, free spirited and all around good folks, I adore them all. We keep in touch through Facebook. Like me, they are practical for the most part, and pragmatic always. They are not pink people at all. But I just found out that everyone in the family (except their father, who is stationed in the Middle East) went out on a special shopping trip to purchase pink watches, which they intend to wear in my honor until I am well again. I cried when I got their message and I know every moment my watch ticks with theirs. An immense comfort.
A week ago someone I barely knew wrote me the most wonderful, supportive, heartfelt notes. It was one of those letters that take awhile to answer, mostly because they render you speechless. The spirit of that amazing person reaches out to embrace you and you are supported at your weakest. The note would have been enough, honestly, to install her in my heart forever, but today she surprised me with the gift of a very fashionable portable file (to carry my records back and forth.) It was stuffed with M&M's and gum and a pink pen on a lanyard. She also gave me her favorite basket and in it was her favorite book, nestled in her favorite scarf, surrounded by her favorite chocolates. All to keep next to my recliner during those weeks that I recover...I had no words to thank her. I think I just cried.
My wonderful Mother-In-Law has offered to let us stay with them for two weeks after the surgery. She will do the cooking and will care for and love on my kids, maybe get them through their finals. She even offered to hire a nurse so that my husband can get some sleep. I haven't answered her email yet. I sit down, but then can't find the words to properly thank her. I give up, I just can't face that generosity without losing it.
ALL of the support I have experienced has been astounding and overwhelming. My heart has to expand to allow it all in. I am filled with love and fear in equal amounts. They don't war with each other. They coexist side by side, both taking up more and more space. They are like tissue expanders for my soul. They are remodeling me.
This is the gift of Cancer.
A year in my life, from the day I was diagnosed and for the full year after. Walk with me.
Showing posts with label support group. Show all posts
Showing posts with label support group. Show all posts
Sunday, April 3, 2011
Friday, April 1, 2011
Day Nine Benedryl Blessings
I can't sleep at night. I can't nap either. It's been 9 days and I have run out of gas. My mind runs on and on and I can't stop it.
Before my shower I took two Benedryl and I hope that will do the job for me and for my husband. When I don't sleep neither does he. We both look just a little older than we did a week ago. My mind is not clear but my heart is full. I have been surrounded by support and love, so much that I can feel it. My husband cares for and adores me. I am being held up.
My stunt sons came by this evening, excited to tell me that their mother gave them permission to shave their heads in solidarity when I have chemo. They are so thrilled to go bald. I tell them that some people take chemotherapy and keep their hair. They are shaving their heads anyway. It makes me giggle.
I have received emails and Facebook posts that I want to print out and tie up with a ribbon like love letters. When I am through with this I want to look back and remember the goodness of humanity.
Why is it that, late at night, even these blessings can't help me sleep?
Before my shower I took two Benedryl and I hope that will do the job for me and for my husband. When I don't sleep neither does he. We both look just a little older than we did a week ago. My mind is not clear but my heart is full. I have been surrounded by support and love, so much that I can feel it. My husband cares for and adores me. I am being held up.
My stunt sons came by this evening, excited to tell me that their mother gave them permission to shave their heads in solidarity when I have chemo. They are so thrilled to go bald. I tell them that some people take chemotherapy and keep their hair. They are shaving their heads anyway. It makes me giggle.
I have received emails and Facebook posts that I want to print out and tie up with a ribbon like love letters. When I am through with this I want to look back and remember the goodness of humanity.
Why is it that, late at night, even these blessings can't help me sleep?
Thursday, March 31, 2011
Day Eight The Boneyard
I love my gym. I belong to a Crossfit gym down town, on the wrong side of the railroad tracks next to the steel fabrication plant and a recycling plant The pavement is heaved and cracked, potholes are the rule and a steady parade of dumptrucks and semis pass our open garage door. When it rains, which is often, the rain drips through the corregated tin warehouse roof and washes off the chalky hashmarks that track our AMRAPs. 5:00am finds it full of sweaty, straining, stinking bodies united in support of their own and everyone else's personal best and dying for their first cup of coffee.
I have belonged to Crossfit gyms before, but each one is different and I love this one. It's been dubbed The Boneyard and I am comfortable there. As comfortable as you can be doing Air Squats, Box Jumps, and finding your Max Dead Lift...It is the place that I have chosen to rehab myself after a cascade of injuries this last year. I am gettiing stronger and shedding pounds slowly, but more importantly I am regaining my chutzpah.
So far they have managed to keep me from injuring myself, not an easy task as I am a pusher. I allow them to choose my weights for me, as I would reach just a little farther than is prudent during this slow comeback. How hard I work within their parameters is entirely my own decision, and I wring every bit of effort from myself. Why would I do less than everyone else there? It would be embarrassing.
Women are the minority, but they are not looked down upon or subjected to condescencion, it simply would not be allowed as one of the owners is a woman and she would kick their ass. Everyone knows everyone else, newbies are welcomed by the whole. Help is ever present, encouragement is abundant. Nirvana. Leave your ego at the door and push yourself 'till you drop.
I told the female partner Jennie about my diagnosis and how I am determined to make Crossfit a partner in my recovery. We teared up, discreetly, 'cause we don't want the guys to think we are crybabies. I think we both realized that I was making an important decision to be, not just a survivor, but a conquerer. The day I return from my surgery I might just plink an exercise band while everyone else plays Wall Ball, but it will be an important day on the road to recovery. Chemo will be another thing entirely, but I will still come even if it's just to row and stretch.
The next day I received an email asking me if I would mind that the Boneyard will be walking in the local Joy to Life breast cancer walk in my honor. I was more than surprised, unexpectedly I felt PROUD. Very soon after I started receiving emails offering support and prayers. I really feel their support behind me, solidly. I know they won't accept less than everything I've got and they'll be there to add a little of their own strength to help me pull through. There will be no retreat and no surrender. It would be embarrassing.
I have belonged to Crossfit gyms before, but each one is different and I love this one. It's been dubbed The Boneyard and I am comfortable there. As comfortable as you can be doing Air Squats, Box Jumps, and finding your Max Dead Lift...It is the place that I have chosen to rehab myself after a cascade of injuries this last year. I am gettiing stronger and shedding pounds slowly, but more importantly I am regaining my chutzpah.
So far they have managed to keep me from injuring myself, not an easy task as I am a pusher. I allow them to choose my weights for me, as I would reach just a little farther than is prudent during this slow comeback. How hard I work within their parameters is entirely my own decision, and I wring every bit of effort from myself. Why would I do less than everyone else there? It would be embarrassing.
Women are the minority, but they are not looked down upon or subjected to condescencion, it simply would not be allowed as one of the owners is a woman and she would kick their ass. Everyone knows everyone else, newbies are welcomed by the whole. Help is ever present, encouragement is abundant. Nirvana. Leave your ego at the door and push yourself 'till you drop.
I told the female partner Jennie about my diagnosis and how I am determined to make Crossfit a partner in my recovery. We teared up, discreetly, 'cause we don't want the guys to think we are crybabies. I think we both realized that I was making an important decision to be, not just a survivor, but a conquerer. The day I return from my surgery I might just plink an exercise band while everyone else plays Wall Ball, but it will be an important day on the road to recovery. Chemo will be another thing entirely, but I will still come even if it's just to row and stretch.
The next day I received an email asking me if I would mind that the Boneyard will be walking in the local Joy to Life breast cancer walk in my honor. I was more than surprised, unexpectedly I felt PROUD. Very soon after I started receiving emails offering support and prayers. I really feel their support behind me, solidly. I know they won't accept less than everything I've got and they'll be there to add a little of their own strength to help me pull through. There will be no retreat and no surrender. It would be embarrassing.
Wednesday, March 30, 2011
Day Seven Regaining Control
It felt great to go back to the gym today. There is something so centering about pain and concentrated effort. My head is not in the game yet and my hip is still gimpy but I completed the workout. Hell, I'm just proud of myself for being there, you see Insomnia has been my lover for the past week. We wrestle each other all night, he can't get enough of me. He is not a generous lover, taking what he wants and leaving me exhausted. Bastard. Getting out of bed at 5:00a.m. is really very hard. I have to go though. This is a necessity in my New Normal.
Today I had my MRI to see if my infiltrating cancer has spread past the locations that we initially found. Thankfully it has not. My lymph nodes are clear. Maybe I will sleep tonight.
We have time to think. Not a lot of time, but some. Maybe enough to make the right decisions. I have been feeling out of control lately. My husband's uncle, a gynecologist in South Carolina, has told us to take a breath and get an education. I am taking his advice to heart. It does not suit me at all to feel out of control in this situation. I am in the saddle after a bad jump, my boots have fallen from the stirrups and my reins have slipped from my hands. The next jump is just ahead and the horse is still running. I have to sit deep in the saddle, center myself, regain contact with my horse by calmly gathering my reins. That is all I can do before this next jump, after that maybe I can search for my stirrups.
Prioritize, be systematic, know my options, hang on baby cause this next jump is going to be a doozy.
My husband's other uncle has made arrangements for us to consult the best breast cancer physician in the country. We will call tomorrow and make plans to fly to Houston.
Our cousin in Birmingham does Diep Flap reconstruction. We will speak to him about doing the surgery up there.
We will speak to a local breast surgeon here and see what he has to say.
I will shore up my ever expanding support group. I wish I had the energy to write about it today, but I can't do it justice. Definitely tomorrow.
Things are coming together, not coming apart.
Today I had my MRI to see if my infiltrating cancer has spread past the locations that we initially found. Thankfully it has not. My lymph nodes are clear. Maybe I will sleep tonight.
We have time to think. Not a lot of time, but some. Maybe enough to make the right decisions. I have been feeling out of control lately. My husband's uncle, a gynecologist in South Carolina, has told us to take a breath and get an education. I am taking his advice to heart. It does not suit me at all to feel out of control in this situation. I am in the saddle after a bad jump, my boots have fallen from the stirrups and my reins have slipped from my hands. The next jump is just ahead and the horse is still running. I have to sit deep in the saddle, center myself, regain contact with my horse by calmly gathering my reins. That is all I can do before this next jump, after that maybe I can search for my stirrups.
Prioritize, be systematic, know my options, hang on baby cause this next jump is going to be a doozy.
My husband's other uncle has made arrangements for us to consult the best breast cancer physician in the country. We will call tomorrow and make plans to fly to Houston.
Our cousin in Birmingham does Diep Flap reconstruction. We will speak to him about doing the surgery up there.
We will speak to a local breast surgeon here and see what he has to say.
I will shore up my ever expanding support group. I wish I had the energy to write about it today, but I can't do it justice. Definitely tomorrow.
Things are coming together, not coming apart.
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